Who can refer patients or families for care?
Services will generally accept a referral from any professional involved with a patient diagnosed with a life-limiting illness. It is important however, that the patient is aware of the referral and consents to it.
How will I know what is happening?
In general organisations communicate closely with all professionals involved in the care of the patient. Communication could be by telephone, meeting or in writing. In the best interests of patient care all professionals need to be as informed as possible at all times.
How will the patients care be managed?
Services should work collaboratively to provide care. It is widely accepted that the district nurse continues to be the key worker while involved in patients care - this is in line with national policy. When this is not the case the clinician having most contact is likely to be the person responsible for managing and co-ordinating care.
How long will you get help for?
Each patient has individual needs and care is normally planned and reviewed in a timely way. Some services will provide care for longer episodes than others - you may need to establish this at the time of referral. Many services adapt to the fluctuating needs of patients and their families and could be involved for a few days or up to several weeks.
